一个小孩一个妈妈和一个自闭症患者稀有的地图.docVIP

share with you, my friends. Ying Chu November 19, 2002 A Boy, a Mother and a Rare Map of Autisms World 一個小孩一個媽媽和一個自閉症患者稀有的地圖 By SANDRA BLAKESLEE LOS ANGELES ?Tito Mukhopadhyay sits in a darkened laboratory, pointing at flashes of light on a computer screen. On his right is a neuroscientist, one of several who are testing Titos ability to see, hear and feel touch. At his left, Titos mother, Soma, watches quietly. Tito Mukhopadhyay坐在一間昏暗的實驗室裡指著電腦銀幕上的閃光，他右邊是一位 測 試他視、聽、觸覺能力的神經專家，Tito的媽媽Soma在左邊靜靜的看著。 Tito, who is 14, often stops the testing with bursts of activity. His body rocks rhythmically. He stands and spins. He makes loud smacking noises. His arms fly in the air as if yanked by a puppeteer. His fingers flutter. Everyone waits. 十四歲的Tito常常停下，來並做一聯串的動作，他有節奏的搖擺身體，他站起來旋 轉， 他發出大聲音，他手臂像被人抽動般地在空中揮舞，他的手指顫動著。大家都等待 著。 Tito reaches for a yellow pad and writes to explain his behavior: I am calming myself. My senses are so disconnected, I lose my body. So I flap. If I dont do this, I feel scattered and anxious. Tito在筆記本上寫出他行為的解釋說：『我在使自己冷靜下來，我的感覺很不聯貫， 我 找不到我的身體，所以我拍打，如果我不這樣做，我覺得人散掉了，並且焦急』。 Tito has severe autism, a disorder that occurs when the brain mysteriously fails to develop normally in infancy and early childhood. Born and raised in India, Tito speaks English with a huge vocabulary. His articulation is poor, and he is often hard to understand. But he writes eloquently and independently, on pads or his laptop, about what it feels like to be locked inside an autistic body and mind. Tito有嚴重的自閉症：一種神秘的的症狀，因在嬰兒和幼兒時腦部無法正常發育而發 生 。他在印度出生、成長，能說英語，且字懂得很多，但常因發音不清晰而讓人無法瞭 解 ，不過他能自己在紙上或手提電腦上很通順的寫出被關在一個自閉症身心裡面的感 受。 Tito is a window into autism such as the world has never seen, said Portia Iversen, a co-founder of Cure Autism Now, a Los Angeles research foundation that brought Tito and Soma to the United States in July 2001 and continues to support them. 一個洛杉磯的研究基金會Cure Autism Now的創辦人之一Portia Iversen說：『Tito 是 世界上僅見的認識自閉症的一扇窗』。