资策会创新应用服务研究所.pptVIP

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2017-09-30 发布于北京
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资策会创新应用服务研究所.ppt

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資策會創新應用服務研究所陳桂苓博士楊奇達經理 2007/10/30 Outlines Project overview IT infrastructure SOA Design for Data Management Implementation of SOA infrastructure Conclusion Taiwan Biobank Project One of the major focuses in “Taiwan Bio-Tech Island Project”. Taiwan Biobank Project National Health Information Project (NHIP) Clinical Trial Research A national project related to public health, biotech, pharmaceutical and healthcare industry development. The 4-years-pilot biobank project launched in early 2006 and will collect 15,000 samples by 2009. The Biobank targets to collect 200,000 samples. What is Biobank 邀請一群特定的健康民眾參與研究，建立一個能夠長期追蹤的前瞻性研究世代(population-based prospective cohort)。藉由長期追蹤這些健康民眾的過程，可觀察帶有危險因子與沒有帶有危險因子的民眾，得病機率之差異，藉以釐清致病因子(如：環境、飲食、基因)與疾病間的關係。 Specific Aims of Taiwan Biobank To understand descriptive epidemiological features and to obtain background risk profiles of common diseases in Taiwan. To explore gene-risk factor/gene-gene interactions associated with common diseases. To Improve the practice of public health. To establish essential biomedical networks of Biobank, leading to the development of Bio-IT. To explore critical issues related to ethnic, legal, and social issues (ELSI) of genomic medicine. Scope of Taiwan Biobank Data in Taiwan Biobank Keep the Balance TW Biobank IT Infrastructure Data De-identification HIPPA(Health Insurance Portability and Accountability Act) Enacted on Aug/21/1996 HIPAA Protected Health Information Names All geographic subdivisions smaller than a state, All elements of dates (except year) for dates directly related to an individual Telephone numbers Fax numbers E-mail addresses Social security numbers Medical record numbers Health plan beneficiary numbers Account numbers Certificate/license numbers Vehicle identifiers and serial numbers, including license plate numbers Medical device identifiers and serial numbers Web Universal Resource Locators (URLs) Internet protocol (IP) address numbers Biometric identi