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Secure Data Linkage and Information Sharing (安全数据链接和信息共享)
HIC 2008 Australias Health Informatics Conference
Editor: Heather Grain
Publisher: Health Informatics Society of Australia Ltd (HISA)
ISBN 978 0 9805520 0 3 © The author(s) HISA All rights reserved
Secure Data Linkage and Information Sharing
With GRHANITE™
1 2
Siaw-Teng Liaw PhD, FRACGP, FACHI , Douglas Boyle PhD, FACHI
1 2
Professor, Senior Research Fellow, School of Rural Health
University of Melbourne Faculty of Medicine, Dentistry Health Sciences.
Abstract
Objectives:
To address and simplify the operational, ethics, consent and governance processes during the secure collection
of individual identifi ers and the accurate, reliable and confi dential identifi cation and re-identifi cation of
individuals to facilitate safety and quality of health care as well as accurate and rigorous evaluation research.
Background:
Linking accurate personal information to decision support systems can improve professional services e.g. health
care or fi nancial management. Linking professions will promote integrated services, avoiding costly duplication
of infrastructure and services. However, where person-specifi c information is held, there are risks of identity
theft or confi dentiality breaches. The ethics and governance processes involved in routinely collecting data for
service provision, research, evaluation, quality assurance, policy development and governance reporting need
to be integrated yet simplifi ed.
Methods:
Functional specifi cations for ethical, secure and accurate information sharing and management were established.
A fl exible decentralised design methodology was adopted to develop GRHANITE™ to manage informed
consent, encrypt, extract,
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