a systematic review of the psychometric properties of quality of life measures for school aged children with cerebral palsy系统回顾生活质量措施的心理属性的学龄儿童脑瘫.pdfVIP

Carlon et al. BMC Pediatrics 2010, 10:81 /1471-2431/10/81 RESEARCH ARTICLE Open Access A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy 1 1,4 1 2 2,3,5 2,3,5* Stacey Carlon , Nora Shields , Katherine Yong , Rose Gilmore , Leanne Sakzewski , Roslyn Boyd Abstract Background: This systematic review aimed to evaluate the psychometric properties and clinical utility of all condition specific outcome measures used to assess quality of life (QOL) in school aged children with cerebral palsy (CP). Methods: Relevant outcome measures were identified by searching 8 electronic databases, supplemented by citation tracking. Two independent reviewers completed data extraction and analysis of the measures using a modified version of the CanChild Outcome Measures Rating Form. Results: From the 776 papers identified 5 outcome measures met the inclusion criteria: the Care and Comfort Hypertonicity Questionnaire (CCHQ), the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD), CP QOL-Child, DISABKIDS and PedsQL 3.0 CP Module. There was evidence of construct validity for all five measures. Content validity was reported for all measures except PedsQL 3.0. The CPCHILD and CP QOL-Child were the only outcome measures to have reported data on concurrent validity. All measures, with the exception of one (CCHQ) provided evidence of internal reliability. The CPCHILD and the CP-QOL-Child had evidence of test- retest reliability and DISABKIDS had evidence of inter-rater reliability. There were no published data on the responsiveness of these outcome measures. Conclusions: The CPCHILD and the CP QOL-Child demonstrated