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outcomes out of africa the selection and implementation of outcome measures for palliative care in africa结果u201c走出非洲u201d的选择和实现结果姑息治疗措施在非洲
Downing et al. BMC Palliative Care 2012, 11:1
/1472-684X/11/1
RESEARCH ARTICLE Open Access
Outcomes ‘Out of Africa’: the selection and
implementation of outcome measures for
palliative care in Africa
1* 2 3 4 4
Julia Downing , Steffen T Simon , Faith N Mwangi-Powell , Hamid Benalia , Barbara A Daveson ,
4 4 4
Irene J Higginson , Richard Harding and Claudia Bausewein , for Project PRISMA
Abstract
Background: End-of-life care research across Africa is under-resourced and under-developed. A central issue in
research in end-of-life care is the measurement of effects and outcomes of care on patients and families. Little is
known about the experiences of health professionals’ selection and implementation of outcome measures (OM) in
clinical care, research, audit, or teaching in Africa.
Methods: An online survey was undertaken of those using outcome measures across the region, as part of the
PRISMA project. A questionnaire addressing the use of OMs was developed for a similar survey in Europe and
adapted for Africa. Participants were sampled through the contacts database of APCA. Invitation emails were sent
out in January 2010 and reminders in February 2010.
Results: 168/301 invited contacts (56%) from 24 countries responded, with 78 respondents having previously used
OM (65% in clinical practice, 12% in research and 23% for both). Main reasons for not using OM were a lack of
guidance/training on using and analysing OM, with 49% saying that they would use the tools if this was provided.
40% of those using OM in clinical practice used POS, and 80% used them to assess, evaluate and monitor change.
The POS was also the main to
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