relational development in children with cleft lip and palate influence of the waiting period prior to the first surgical intervention and parental psychological perceptions of the abnormality关系发展的唇腭裂患儿的影响之前等待期第一外科干预和父母的心理认知的异常.pdfVIP

Grollemund et al. BMC Pediatrics 2012, 12:65 /1471-2431/12/65 STUDY PROTOCOL Open Access Relational development in children with cleft lip and palate: influence of the waiting period prior to the first surgical intervention and parental psychological perceptions of the abnormality 1,2* 3,4 5 5 5 Bruno Grollemund , Antoine Guedeney , Marie-Paule Vazquez , Arnaud Picard , Véronique Soupre , 6 7 8 9 10 Philippe Pellerin , Etienne Simon , Michel Velten , Caroline Dissaux , Isabelle Kauffmann , Catherine Bruant-Rodier9 and Anne Danion-Grilliat2,11 Abstract Background: The birth of a child with a cleft lip, whether or not in association with a cleft palate, is a traumatic event for parents. This prospective, multidisciplinary and multi-centre study aims to explore the perceptions and feelings of parents in the year following the birth of their child, and to analyse parent–child relationships. Four inclusion centres have been selected, differing as to the date of the first surgical intervention, between birth and six months. The aim is to compare results, also distinguishing the subgroups of parents who were given the diagnosis in utero and those who were not. Methods/Design: The main hypothesis is that the longer the time-lapse before the first surgical intervention, the more likely are the psychological perceptions of the parents to affect the harmonious development of their child. Parents and children are seen twice, when the child is 4 months (T0) and when the child is one year old (T1). At these two times, the psychological state of the child and his/her r