study protocol optimization of complex palliative care at home via telemedicine. a cluster randomized controlled trial研究方案优化复杂的姑息治疗在家里通过远程医疗。.pdfVIP
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study protocol optimization of complex palliative care at home via telemedicine. a cluster randomized controlled trial研究方案优化复杂的姑息治疗在家里通过远程医疗。
Duursma et al. BMC Palliative Care 2011, 10:13
/1472-684X/10/13
STUDY PROTOCOL Open Access
Study protocol: optimization of complex palliative
care at home via telemedicine. A cluster
randomized controlled trial
1* 2 1 1
Froukje Duursma , Henk J Schers , Kris CP Vissers and Jeroen Hasselaar
Abstract
Background: Due to the growing number of elderly with advanced chronic conditions, healthcare services will
come under increasing pressure. Teleconsultation is an innovative approach to deliver quality of care for palliative
patients at home. Quantitative studies assessing the effect of teleconsultation on clinical outcomes are scarce. The
aim of this present study is to investigate the effectiveness of teleconsultation in complex palliative homecare.
Methods/Design: During a 2-year recruitment period, GPs are invited to participate in this cluster randomized
controlled trial. When a GP refers an eligible patient for the study, the GP is randomized to the intervention group
or the control group. Patients in the intervention group have a weekly teleconsultation with a nurse practitioner
and/or a physician of the palliative consultation team. The nurse practitioner, in cooperation with the palliative care
specialist of the palliative consultation team, advises the GP on treatment policy of the patient. The primary
outcome of patient symptom burden is assessed at baseline and weekly using the Edmonton Symptom
Assessment Scale (ESAS) and at baseline and every four weeks using the Hospital Anxiety and Depression Scale
(HADS). Secondary outcomes are self-perceived burden from informal care (EDIZ), patient experienced continuity of
medical care (NCQ), patient and caregiver satisfaction with the teleconsultation (PSQ), the exper
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