社区咨询COMMUNITYCONSULTATION以社区为基础.pptVIP

研究的历史History of Research Activism 艾滋病研究在20世纪80年代开始，这种耽搁产生许多社会所关注的问题 AIDS research began slowly in the 1980’s and the delay produced much concern 同性恋社区的活动分子带头挑战研究的优先权和研究进度 Activists from the Gay community lead in challenging research priorities and the pace of research 活动组织有争议的活动导致在HIV/AIDS研究京进行社区咨询 Activist organization’s controversial efforts resulted in including community consultation in HIV/AIDS research. 近些年，很多研究课题都使用社会顾问 In recent years community advisors have been included in a wide range of research projects. CAB是什么？ What is a CAB? “社区顾问委员会” Community Advisory Board 社区成员Community members 研究中可能参与者的代表 Representing potential participants in research 有研究课题方面的知识Educated about the project 社区成员中的倡导者Advocates for community members 研究和合作者Research collaborators 社区最重要 Community Comes First 1. 在研究开始之前，研究人员必须与社区沟通并建立信任 Before the research begins, researchers must build trust and communication with the community. 2. 科学家在申请资金前应想到向社区咨询 Scientists should think about community consultation before writing their grant. 提 问Questions * * 社区咨询： COMMUNITY CONSULTATION: 以社区为基础的HIV研究经验总结： 适合中国吗？ LESSONS LEARNED IN HIV COMMUNITY-BASED RESEARCH : RELEVANCE FOR CHINA? Ronald P. Strauss, D.M.D., Ph.D. University of North Carolina at Chapel Hill 在过去的70年中,生物医学研究的伦理学领域已经成为社会关注的中心 The realms of biomedical research ethics have been a central societal concern during the past 70 years.? 两个主要的历史事件：2 main historical events: ?1. 纳粹医学试验 Nazi Medial Experimentation ?2. Tuskegee 梅毒研究 Tuskegee Syphilis Study 社区与科学家结合计划（ LinCS) Linking Communities and Scientists LinCS项目旨在了解与科学家和社区相联系的社会和伦理学问题 Project LinCS was launched to investigate the social and ethical issues in linking scientists and communities. 由CDC和NIAID共同资助 Funded jointly by CDC and NIAID 三所大学：3 Universities: 北卡大学UNC-Chapel Hill 宾州大学U of Penn 旧金山加州大学USF 目标1：Goal 1: 了解社区怎样认识生物医学研究，做什么可以提高社区对科学、科研机构及科技工作者的信任度 To understand how communities perceive biomedical research and what can be done to improve