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Infant industry- China’s ethical debate over genetics differs wildly from the West
Infant industry: China?s ethical debate over genetics differs wildly from the West
In a low rise building in China Medical City, a sprawling industrial park in the eastern Yangtze Delta, scientists are building one of the world?s largest stores of genetic information. Biobanks like this one hold the promise of unlocking trends in genetic heredity and creating potent new biological drugs.
The potential benefit of these banks has grown in recent years due to a dramatic drop in the expense of doing genetic research. The cost of sequencing a human genome plunged from US$8.9 million in July 2007 to just US$10,500 three years later. Industry watchers expect the price to fall below US$1,000 within a year or two.
The data surrounding human sequencing is set to explode within the next decade. As genetic information becomes more readily available, conflicts over how to use and store this information are also bound to increase. Many in the West fear that genetic data could be misused to persecute those with certain genetics traits or defects, perhaps resulting in insurance company rejections or selective abortions. And with biological medicine still in its infancy, it is unclear whether doctors should disclose to patients the presence of genetic proclivities for diseases they may never get.
in the vault At the heart of this debate is how biobanks collect, store and use genetic information, and whether these processes infringe the rights of those who donate their genes.
China?s earliest biobank, the Guangzhou Biobank Cohort Study (GBCS), provides a case study in the pitfalls of this process. Wen-Ching Sung, a professor of anthropology at the University of Toronto, described how GBCS collected samples in 2003 through a partnership with a welfare association for the elderly, using methods that would merit a lawsuit in the West.
In one incident reported by “Nanfang City News,” GBCS collected genetic data from 42 elderly association members who had come for a free
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