“the logic of care” – parents’ perceptions of the educational process when a child is newly diagnosed with type 1 diabetesu201c关怀u201d的逻辑u2014u2014父母对教育过程的看法当一个孩子新诊断为1型糖尿病.pdfVIP

Jönsson et al. BMC Pediatrics 2012, 12:165 /1471-2431/12/165 RESEARCH ARTICLE Open Access “The Logic of Care” – Parents’ perceptions of the educational process when a child is newly diagnosed with type 1 diabetes Lisbeth Jönsson*†, Inger Hallström† and Anita Lundqvist† Abstract Background: The number of new cases of type 1 diabetes mellitus (T1DM) has increased substantially in recent years and it is now one of the most common long-term endocrine disorders in childhood. In Sweden the child and family are hospitalised in accordance with the national guidelines for one to two weeks at diagnosis. The purpose of this study was to describe parents’ perceptions of the educational process when their child is newly diagnosed with T1DM. Methods: Qualitative interviews were performed in the south western part of Sweden with ten mothers and eight fathers of children, diagnosed with T1DM, at three to six months after they had received the diagnosis. The interviews were analysed using deductive content analysis and Mol’s philosophical theory. Results: The results show that almost all parents had experienced the educational process as being satisfactory. However, most parents felt that the teaching needed to be adapted to the individual families and to help them to learn to live with diabetes in their everyday lives. Rather than merely teaching according to a fixed schedule and cramming knowledge, the education should be parent-centered and provide time for grief and shock. There should also be a greater emphasis on why certain things should be done rather than on what should be done. The routines learned at the hospital made the efforts to be good parents managing the child’s disease, and continuing to lead a normal family life, a difficult task. Conclusions: In order to optimize the educational process for families with