原创力文档a patient survey of the impact of fibromyalgia and the journey to diagnosis一个病人的调查诊断纤维肌痛和旅行的影响.pdfVIP
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a patient survey of the impact of fibromyalgia and the journey to diagnosis一个病人的调查诊断纤维肌痛和旅行的影响
Choy et al. BMC Health Services Research 2010, 10:102
/1472-6963/10/102
R E S E A R C H A R T I C L E Open Access
Research article
A patient survey of the impact of fibromyalgia and
the journey to diagnosis
1 2 3 3 3 4 4
Ernest Choy , Serge Perrot , Teresa Leon , Joan Kaplan , Danielle Petersel* , Anna Ginovker and Erich Kramer
Abstract
Background: Fibromyalgia is a painful, debilitating illness with a prevalence of 0.5-5.0% that affects women more than
men. It has been shown that the diagnosis of fibromyalgia is associated with improved patient satisfaction and
reduced healthcare utilization. This survey examined the patient journey to having their condition diagnosed and
studied the impact of the condition on their life.
Methods: A questionnaire survey of 800 patients with fibromyalgia and 1622 physicians in 6 European countries,
Mexico and South Korea. Patients were recruited via their physician.
Results: Over half the patients (61%) were aged 36-59 years, 84% were women, and the mean time since experiencing
fibromyalgia symptoms was 6.5 years. Patients had experienced multiple fibromyalgia symptoms (mean of 7.3 out of
14), with pain, fatigue, sleeping problems and concentration difficulties being the most commonly reported. Most
patients rated their chronic widespread pain as moderate or severe and fibromyalgia symptoms were on average
fairly to very disruptive, and had a moderate to strong impact on patients lives. 22% were unable to work and
25% were not able to work all the time because of their fibromyalgia. Patients waited on average almost a year after
experiencing symptoms before presenting to a physician, and it took an average of 2.3 years and presenting to 3.7
different physicians
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