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ambulatory oxygen why do copd patients not use their portable systems as prescribed a qualitative study流动的氧气copd患者为什么不使用他们的便携式系统规定定性研究
Arnold et al. BMC Pulmonary Medicine 2011, 11:9
/1471-2466/11/9
RESEARCH ARTICLE Open Access
Ambulatory oxygen: why do COPD patients not
use their portable systems as prescribed?
A qualitative study
Elizabeth Arnold1,2†, Anne Bruton1*, Maggie Donovan-Hall1†, Angela Fenwick3†, Bridget Dibb4†, Elizabeth Walker5
Abstract
Background: Patients with COPD on long term oxygen therapy frequently do not adhere to their prescription, and
they frequently do not use their ambulatory oxygen systems as intended. Reasons for this lack of adherence are
not known. The aim of this study was to obtain in-depth information about perceptions and use of prescribed
ambulatory oxygen systems from patients with COPD to inform ambulatory oxygen design, prescription and
management.
Methods: A qualitative design was used, involving semi-structured face-to-face interviews informed by a grounded
theory approach. Twenty-seven UK community-dwelling COPD patients using NHS prescribed ambulatory systems
were recruited. Ambulatory oxygen systems comprised cylinders weighing 3.4 kg, a shoulder bag and nasal
cannulae.
Results: Participants reported that they: received no instruction on how to use ambulatory oxygen; were uncertain
of the benefits; were afraid the system would run out while they were using it (due to lack of confidence in the
cylinder gauge); were embarrassed at being seen with the system in public; and were unable to carry the system
because of the cylinder weight. The essential role of carers was also highlighted, as participants with no immediate
carers did not use ambulatory oxygen outside the house.
Conclusions: These participants highlighted previously unreported problems that prevented them from using
ambulatory oxygen as prescribed. Our novel findings point to: concerns with the lack of specific information
provision; the
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