quality of the parent-child interaction in young children with type 1 diabetes mellitus study protocol亲子互动的质量在儿童1型糖尿病研究协议.pdfVIP

Nieuwesteeg et al. BMC Pediatrics 2011, 11:28 /1471-2431/11/28 STUDY PROTOCOL Open Access Quality of the parent-child interaction in young children with type 1 diabetes mellitus: study protocol 1 1 2 1,3 4 Anke M Nieuwesteeg , Frans Pouwer , Hedwig JA van Bakel , Wilco HM Emons , Henk-Jan Aanstoot , Roelof Odink5 and Esther E Hartman1,2* Abstract Background: In young children with type 1 diabetes mellitus (T1DM) parents have full responsibility for the diabetes-management of their child (e.g. blood glucose monitoring, and administering insulin). Behavioral tasks in childhood, such as developing autonomy, and oppositional behavior (e.g. refusing food) may interfere with the diabetes-management to achieve an optimal blood glucose control. Furthermore, higher blood glucose levels are related to more behavioral problems. So parents might need to negotiate with their child on the diabetes-management to avoid this direct negative effect. This interference, the negotiations, and the parent’s responsibility for diabetes may negatively affect the quality of parent-child interaction. Nevertheless, there is little knowledge about the quality of interaction between parents and young children with T1DM, and the possible impact this may have on glycemic control and psychosocial functioning of the child. While widely used global parent-child interaction observational methods are available, there is a need for an observational tool specifically tailored to the interaction patterns of parents and children with T1DM. The main aim of this study is to construct a disease-specific observational method to assess diabetes-specific parent-child interaction. Additional aim is to explore whethe