(精选)Are Endometriosis Guidelines following the Guidelines教学课件.pptVIP

4th International Congress on Endometriosis Are Endometriosis Guidelines following the Guidelines? Judy Birch Pelvic Pain Support Network Project background IAPO Global Patient’s Congress – Budapest Feb 2008 Clinical guidelines - lack of multi-disciplinary and patient input in clinical guideline development with a focus on Chronic Pelvic Pain and Endometriosis Twinning partnership – PPSN and WFIP with IAPO support 4th International Congress on Endometriosis What we did Supported by 13 patient organizations ( IC, Endometriosis, Infertility, Vulval Pain, Continence and Gynaecology) from 8 countries 8 National, European and International guideline development bodies. Included copies of the AGREE Instrument and IAPO policy statement and guidelines on patient involvement 4th International Congress on Endometriosis Endometriosis guidelines 4th International Congress on Endometriosis 4th International Congress on Endometriosis Graphs taken from: Appleyard T.L., et. al., (2006) Systematic review “Guidelines for the management of pelvic pain associated with endometriosis: a systematic appraisal of their quality” BJOG 113:749–75. National Institute of Health and Clinical Excellence Multi-disciplinary and patient involvement NHS evidence – new part of NICE 4th International Congress on Endometriosis NICE France – 2006 Endometriosis guidelines published 2007– working group- Gynaecologists, radiologists. Reviewers- Gynaecologists, radiologists, anaesthetist, colo-rectal, patient preferences Other countries – Germany 4th International Congress on Endometriosis