互动论坛意见反馈表-CentreforBionetworking.DOC

PAGE PAGE 1 Report of Roundtable on Patient Needs in Beijing By Xinqing Zhang, ,Suli Sui, Yeyang Su, 1 Introduction On March 27 2014, the Centre for Bionetworking held a Public Event on patients’ needs in regard with potential usage of stem cell therapy in the future at Xiannongtan Residential Community in Beijing. The interactive public event was organised by the Centre for Bionetworking and the Xiannongtan Residential Community in collaboration with the Beijing Institute of Oriental Life Research and Bioon, Bio-Events, China. The Beijing Institute of Oriental Bioculture was involved in many brainstorming preparation meetings and helped us to invite scholars, practitioners and patients. They also contributed to formulating the topics of the event. The Bioon helped us to disseminate the information, before, during and after the event. They also helped us to prepare the booklet and invite scholars in the field of stem cell research. The aims of the Public Event are two: i) to gain a better understanding of patients’ needs and expectatio; ii) to examine how patients are perceived to the emerging biobechnology especially stem cell therapy to meet their needs. 2 Contribution of panelists This event brought together patients, stem cell researchers, medical professionals and regulators to talk about patient needs, discussing the potential usage of stem cell therapy in the future. Interactive panels consist of four experts from different background. One stem cell researcher from the Peking Union Medical College, a general practitioner from Chaoyang Residential Hospital, one public policy researcher from the Institute of Policy and Management of Chinese Academy of Sciences and a patient representative from the local community. In addition, we invited a bioethics researcher and a journal editor who participated in the later session, together with the patients. Our research showed that the local community was interested in learning about stem cell resea