TED中英官方演讲稿-JenniferBrea_2016T[珍·布瑞][当你的疾病医生无法诊断时该怎么办].pdf

TED演讲者 ：Jennifer Brea | 珍·布瑞 演讲标题 ：W at appens w en you ave a disease doctors cant diagnose | 当你的疾病医生无法诊 断时该怎么办 ？ 内容概要 ：Five years ago, TED Fellow Jennifer Brea became progressively ill wit myalgic encep alomyelitis, commonly known as c ronic fatigue syndrome, a debilitating illness t at severely impairs normal activities and on bad days makes even t e rustling of bed s eets unbearable. In t is poignant talk, Brea describes t e obstacles s es encountered in seeking treatment for er condition, w ose root causes and p ysical effects we dont fully understand, as well as er mission to document t roug film t e lives of patients t at medicine struggles to treat. 五年前 ，TED的员工珍·布瑞 开始患有肌痛性脑脊髓炎且日趋严重。此病俗称慢性疲劳综合症 ，是一种使人衰 弱的疾病 ，它严重地影响正常的活动。糟糕的时候甚至床单的沙沙声都会难以忍受。 在这场令人心酸的演讲 中 ，布瑞描述了她在寻求治疗这种我们不完全了解根本原因和对身体影响的疾病所以到困难 ，同时表达她的 使命—通过电影的形式记录患者临床治疗的艰辛。 www.XiYuS 锡育软件 Thank you. 谢谢你们。[00:19] [Jennifer Brea is sound-sensitive. [ 妮佛 布列对声音敏感。[00:20] The live audience was asked to applaud ASL-sty le, in silence.]现场观众被要求以无声的手语式鼓掌。] 这是五年 So, five years ago, this was me. 前的我。[00:22] I was a PhD student at Harvard, and I loved to travel. 我那时是哈佛大学攻读博士的学生, 我非常喜欢旅 游。[00:29] I had j ust gotten engaged to marry the love of my life. 我那时刚与我生命的最爱订婚。[00:34] I was 28, and like so many of us when we are in good health, I我那时28岁,和我们许多人一样在健康时候, 我觉得 felt like I was invincible. 我是无所不能。[00:39] Then one day I had a fever of 104.7 degrees. 突然有一天,我发烧到 104.7度。[00:46] I probably should have gone to the doctor, but Id never 我那时应该去看医生, 但是我从没生过什么病, 我 really been sick in my life, and I knew that usually, if you have 知道通常如果你感染了病毒, 你应该在家里休息,煮