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Explicit and implicit information needs of people with depression a qualitative investigation of problems reported on an online depression support forum
Barneyetal.BMCPsychiatry2011,11:88
/1471-244X/11/88
RESEARCH ARTICLE
OpenAccess
Explicitandimplicitinformationneedsofpeople
withdepression:aqualitativeinvestigationof
problemsreportedonanonlinedepression
supportforum
LisaJBarney1*,KathleenMGriffiths1andMichelleABanfield2
Abstract
Background:Healthmanagementisimpededwhenconsumersdonotpossessadequateknowledgeabouttheir
illness.Atapublichealthlevel,consumerknowledgeaboutdepressionisparticularlyimportantbecausedepression
ishighlyprevalentandcausessubstantialdisabilityandburden.However,currentlylittleisknownaboutthe
informationneedsofpeoplewithdepression.Thisstudyaimedtoinvestigatetheexplicitandimplicitinformation
needsofusersofanonlinedepressionsupportforum.
Methods:Asampleof2680postswassystematicallyselectedfromthreediscussionforumsonanonline
depressionbulletinboard(.au).Datawereexaminedforevidenceofrequestsforinformation
(reflectingexplicitneeds)andreportsofpastorcurrentproblems(implicitneeds).Thematicanalysiswas
conductedusingadata-driveninductiveapproachwiththeassistanceofNVivo7,andinstancesofquestionsand
peoplereportingparticulartypesofproblemswererecorded.
Results:Atotalof134participantswithpersonalexperienceofdepressioncontributedtothedataanalysed.Six
broadthemesrepresentedparticipantqueriesandreportedproblems:Understandingdepression;disclosureand
stigma;medication;treatmentandservices;copingwithdepression;andcomorbidhealthproblems.Avarietyof
specificneedswereevidentwithinthesebroadthematicareas.Somepeople(n=46)expressedtheirinformation
needsbyaskingdirectquestions(47queries)butthemajorityofneedswereexpressedimplicitly(351problems)
bythe134participants.Themostevidentneedforinformationrelatedtocopingwithdepressionandits
consequences,followedbytopicsassociatedwithmedication,treatmentandservices.
Conclusions:Peoplewithdepressionhavesubstantialunmetinformationneedsandrequirestrategiestodeal
withthedifficultiestheyface.Theyrequireaccesstohighqualityandrelevantonlineresourcesandprofessionals;
thus,thereisaneedtorect
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