重症肌无力患者pro量表的研制和条目筛选（Development and screening of Pro scale for myasthenia gravis patients）.docVIP

重症肌无力患者pro量表的研制和条目筛选（Development and screening of Pro scale for myasthenia gravis patients） [Abstract] [Objective] developed has good reliability, validity, responsiveness and applicable to traditional Chinese medicine and Western medicine clinical evaluation of the myasthenia gravis PRO scale (MG / PRO). [Methods] according to the programming method developed by the international general scale, the scale was defined and the framework of scale was established. The task force sets up an entry pool and gets a pre survey scale containing 78 entries through cultural adaptation and language tests. Clinical investigation of 200 cases were collected samples (100 healthy people, 100 cases of patients with myasthenia gravis), the use of expert evaluation, dispersion analysis, factor analysis, stepwise regression analysis and internal consistency analysis and other methods of pre survey scale screening. [results] screening items, combined with expert opinion, adjust the framework of scale, MG and PRO get the formal scale. The formal scale contains 52 entries, which are divided into 4 fields: physiology, society, psychology, treatment and 8 aspects. [Conclusion] MG and PRO scale reflects the WHO (WHO) special issue, the connotation and the myasthenia gravis patients on quality of life of high feasibility, it is considered that the scale for the assessment of patients with myasthenia gravis. Patient reported outcomes (patient and reported outcomes, PRO) scale as the feelings of self assessment tools have been recognized. Foreign countries have developed severe amount of quality of life in patients with myasthenia gravis, such as MGQ Padua [1-2] developed Mullins [3] development, MG QOL, and Burns [4] developed MG QOL scale. In China, there is a lack of corresponding measurement scales for myasthenia gravis patients. Xue Zhiqiang [5] by Burns MG and QOL scale of patients with myasthenia gravis, but not for the validity of reliability evaluation of this scale, and because of cult