research ethics recommendations for whole-genome research consensus statement研究伦理对全基因组研究的共识声明的建议.pdfVIP

Perspectives Research Ethics Recommendations for Whole-Genome Research: Consensus Statement * Timothy Caulfield , Amy L. McGuire, Mildred Cho, Janet A. Buchanan, Michael M. Burgess, Ursula Danilczyk, Christina M. Diaz, Kelly Fryer-Edwards, Shane K. Green, Marc A. Hodosh, Eric T. Juengst, Jane Kaye, Laurence Kedes, Bartha Maria Knoppers, Trudo Lemmens, Eric M. Meslin, Juli Murphy, Robert L. Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N. Ray, Jeremy Sugarman, Michael Timmons dvances in technology have covered in this paper are current issues field (Box 2). Indeed, the door must made it possible to sequence worthy of immediate attention. remain open for further reflection on Aa whole human genome [1,2]. The paper starts with initial these and other social concerns. National and international funding considerations, including general initiatives have stimulated whole- recommendations about governance Initial Considerations, Governance, genome research activities [3,4], and and the characterization of the and Oversight media coverage of both the science research activities related to the whole Whole-genome research can be utilized [5,6] and the emerging commercial genome. It is important to note that in a wide variety of contexts, including offerings [7,8] related to genome while there was consensus on all as a mode to advance sequencing research has heightened public recommendations, there was a good technology, to develop a research awareness and interest