talking about living and dying with the oldest old public involvement in a study on end of life care in care homes谈论生活和死亡与最古老的旧公共参与研究的护理在护理家庭.pdfVIP
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talking about living and dying with the oldest old public involvement in a study on end of life care in care homes谈论生活和死亡与最古老的旧公共参与研究的护理在护理家庭
Goodman et al. BMC Palliative Care 2011, 10:20
/1472-684X/10/20
RESEARCH ARTICLE Open Access
Talking about living and dying with the oldest
old: public involvement in a study on end of life
care in care homes
1* 1 1 1 1 1
Claire Goodman , Elspeth Mathie , Marion Cowe , Alex Mendoza , Daphne Westwood , Diane Munday ,
1 2 3 4 5 6
Patricia M Wilson , Clare Crang , Katherine Froggatt , Steve Iliffe , Jill Manthorpe , Heather Gage and
Stephen Barclay7
Abstract
Background: Public involvement in research on sensitive subjects, such as death and dying, can help to ensure
that questions are framed to reflect the interests of their peers, develop a shared understanding of issues raised,
and moderate the often unequal power relationship between researcher and participant. This paper describes the
contribution and impact of older members of a Public Involvement in Research group (PIRg) to a study on living
and dying in care homes.
Methods: A longitudinal study, with a mixed method approach, its aims were to capture key experiences, events
and change over one year, of older people resident in participating care homes in the East of England. Residents
were interviewed up to three times and their case notes were reviewed four times over the year. Interviews were
semi structured, and recorded. Four members of a Public Involvement in Research group (PIRg) contributed to
preliminary discussions about the research and three were involved with many of the subsequent stages of the
research process including the facilitation of discussion groups with residents.
Results: There were three ar
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