面对污名化0-中华传播学会.pdfVIP

面對污名化 0 面對污名化 面對污名化－ 女性紅斑性狼瘡患者對媒體行為與形象污 名化的感知與回應 《摘要《摘要 》》 《《摘要摘要 》》 醫療資訊的取得是患者療癒情況是否良好的關鍵因素之一 ，對女性紅斑性 狼瘡患者來說更形重要 。但台灣至目前為止尚未能有足以令人滿意的醫療訊息傳 播系統 ，此時新興媒體的出現便彌補了正規醫療體系的不足，成為患者高度依賴 的健康傳播管道 。 然而醫界普遍對女性紅斑性狼瘡患者的媒體使用行為投以污名化的眼光 ， 電視媒體中呈現女性紅斑性狼瘡患者時 ，又往往是帶有偏差的污名形象。在這樣 雙重的污名化下 ，女性紅斑性狼瘡患者如何使用媒體以及其背後的原因，變成為 本研究的焦點 。本研究亦探討患者對於媒體污名的期待與應對之道。 研究結果證實外界對患者的污名化實屬錯誤認知 ，媒體其實可為醫病關係 提供一個新的助力 。我們建議醫療人員更正面的看待患者的媒體使用，並建議媒 體工作者為患者建立更積極多元的媒體形象 。 關鍵詞: 污名 、紅斑性狼瘡、女性、媒體使用行為、媒體形象 1 面對污名化 Facing the Stigma: －－ Female SLE Patients’ Responses to －－ Stigmatic Media Usages and Images Abstract Getting medical information is essential to significant disease patients. Unfortunately, Taiwan has not been able to provide satisfying communication channels in terms of medial information. Today, with the arising of new media, patients today have a chance to search for help through Internet. However, by doing so, they are under the pressure of criticize from doctors and more than often they encounter biased images on televised media. It is especially true toward female SLE patients, who are suffering the stigma of their media usage and stigmatic media images. To find out the truth behind the stigma, we held a focus group of female SLE patents. We investigated their behaviors of media usage and responses toward biased media images. We concluded that female SLE patents are just the opposite of what our society think: they process online information carefully; they never try to replace doctors with new media; they clearly indicate Internet can provide them certain functions that can’t be found in our traditional media systems. We hope our findings can ser