恶性淋巴瘤患儿家属心理历程质性研究.docVIP

恶性淋巴瘤患儿家属心理历程质性研究 　　【摘要】目的了解恶性淋巴瘤患儿的家属在陪伴子女诊断、治疗、康复过程中的真实心理感受,为临床护理人员对患儿家属进行心理支持提供借鉴。方法通过访谈形式,访问了6位恶性淋巴瘤患儿的家属,将获得的资料进行分析,整理,提出主题。结果患儿的家属在子女患有恶性肿瘤过程中承受着巨大的心理压力和经济压力,表现过程为初诊时的震惊、困惑、拒绝,逐渐转变成无奈接受,对未来持悲观心理。支持系统主要来自家人以及其他恶性淋巴瘤患儿家属。结论恶性淋巴瘤患儿家属需要深切人文关怀和情感支持,护理人员应采取个性化的护理措施,帮助、指导患儿及其家属提高生活质量,度过这一艰辛历程。? 　　【关键词】 　　恶性淋巴瘤; 患儿家属; 心理; 质性研究 　　?? 　　Qualitative research of psychological experience of children m alignant lymphoma patients’ parents 　　 　　【Abstract】ObjectiveTo understand the real psychological reception of children m alignant lymphoma patients’ parents during the diagnosis,treatment and rehabilitation process,to provide clinical nursing staff illustration of how to give psychological supports to patients’ parents.MethodsTo interview 6 family members of childrent m alignant lymphoma patients,organize and anylze the abtained data and propose the theme.The result shows the parents of children m alignant lymphoma patients have experienced enormous psychological and economic stress,the behaving processes are the initial shock and confusion,refusion at the pre-diagnose period,and then reluctant acceptance,finally to have pressimistic attitude to the future.The supporting system is mainly from other family members and other parents of children m alignant lymphoma patients.ConclusionParents of children m alignant lymphoma patients need deep humanistic care and emotional support; nursing staff should adopt personalized nursing method,help and guide the patients and their parents to improve living standards and finally go thrugh the hardship.? 　　【Key words】 　　M alignant lymphoma; Children; Family members; Psychological; Qualitative research 　　? 　　20世纪70年代起,传染病已不再是危害儿童的第一杀手,恶性肿瘤已经成为我国乃至世界除意外伤害外最常见的儿童死亡原因。恶性淋巴瘤发病率占据第三位,但随着现代医学的发展,获得长期生存的患者越来越多,如应用综合治疗、放疗、化疗、手术。长期无病生存率可达68%,对每一位恶性淋巴瘤患儿的家属而言,他们承受着可能失去孩子的恐惧;承担着联系医院和安排孩子住院期间生活的繁杂劳务;承担着漫长治疗过程中的坎坷和沉重的经济负承担着来自社会、家庭、自身工作和发展的压力;也承担着子女治愈后的教育、职业等问题的困扰。患儿家属的心理压力是不言而喻的,让她们得到个性化的专业指导,在陪伴患儿求医这段漫长过程中安然度过,尽可能保持较高的生活质量,是我们努力的方向。本研究的目的是了解恶