社会支持系统对多发性硬化患者生活质量的研究.doc

社会支持系统对多发性硬化患者生活质量的研究 中国人民解放军总医院 ［ ］目的：探讨社会支持系统对多发性硬化患者生活质量的影响。方法：应用 “社会支持评定量表”和多发性硬化牛活质量54项评分量表(MSQOLndash;54), 调查105例多发性硬化患者所获得的社会支持状况及牛活质量，选取同期70例 健康志愿者作对照研究，根据调查结果实施针对性的护理干预方案。结果：多发 性硬化患者社会支持明显低于健康对照组(t二2.548, Plt;0.05)；年龄洋；60岁 组主观支持、社会支持总分明显低于lt;60岁年龄组(t=2.353~3.079, Plt;0.05)； 丧偶或离异组客观支持、主观支持、支持利用度、社会支持总分明显低于正常家 庭组(1=3.985^8.350, Plt;0.05)；干预后，多发性硬化患者躯体功能、躯体致 角色受限、情绪致角色受限、健康认识、疼痛、精力、情绪状况、性功能、社会 功能、认知功能、应激、总牛活质量评分均明显高于干预前(t二2.170~6.344, Plt;0.05)o结论：多发性硬化患者是社会支持较低的弱势群体，加强社区支持系 统干预能提高MS患者的牛活质量。 ［关键词］多发性硬化；社会支持；生活质量 ［AbstractJObjective: To investigate effects of social support system on quality of life in patients with multiple sclerosis.Methods: The author uses social support rating scale (SSRS) and multiple sclerosis quality of life questionnaire of 54 items (MSQOL-54) to investigate the quality of life in multiple sclerosis patients (n=105) and healthy volunteers (n二70). Finally, the author puts forward intervention programs. Results: The social support of multiple sclerosis patients was significantly lower than the control group (t=2.548, plt;0.05). The subjective support and total level of social support of people who are more than 60 years old (including 60 years old) are lower than people who are less than 60 years old (t=2.353^3.079, plt;0.05). The scores of objective support, subjective support, use of support and the total level of social support of people who are widowed or divorced were significantly lower than a normal family group (t=3.985~8.350, p~0.05). Results after the intervention, the multiple sclerosis patientsrsquo; total quality of life scores (including physical function, role restriction caused by physical, role restriction caused by emotion, health awareness, pain, energy, emotional status, sexual function, social function, cognitive function, stress) were significantly higher than before (t=2.170^6.344, plt;0.05).Conclusion: The multiple sclerosis patients is a vulnerable group with a low level of social support. Enhancing in terve ntio