运用病友会管理强直性脊柱炎患者的临床疗效评价.docVIP

运用病友会管理强直性脊柱炎患者的临床疗效评价 　　【摘 要】目的：探讨以病友会为载体的管理模式对强直性脊柱炎患者干预的效果。方法：将纳入研究的60例强直性脊柱炎患者随机分为研究组和对照组，每组30例。研究组采用以病友会为载体的管理模式进行干预；对照组采用每月电话随访，门诊随诊，记录随访情况，开展健康教育。干预1年后，观察两组患者满意度、疼痛视觉模拟评分法（VAS）评分及生活质量评分，采集疾病Bath指数。结果：研究组患者在疾病Bath指数、VAS等方面的评分显著高于对照组（P 0.01）；研究组满意度、生活质量评分等方面的改善均显著优于对照组（P 0.01）。结论：开展以病友会为载体的管理模式对强直性脊柱炎患者进行教育活动，可以有效改善疾病Bath指数、疼痛VAS评分，对其控制疾病进展、减轻患者痛苦、降低复发率、提高生活质量起着重要的作用，值得临床推广。 　　【关键词】 脊柱炎，强直性；病友会；管理模式 　　doi：10.3969/j.issn.2095-4174.2015.06.005 　　Therapeutic Effect Evaluation of Managing Patients of Ankylosing Spondylitis with Patient Association 　　LIN Cheng-feng，LIU Lian-qun，CHEN Chang-xian，HUANG Mei-yu，CAI Mei-mei，XU Bao-zhen， 　　LIN Yuan-ping，WU Mei-ting 　　【ABSTRACT】Objective：To investigate the therapeutic effect of managing patients of ankylosing spondylitis with patient association.Methods：60 cases of ankylosing spondylitis were randomly and equally divided into a research group and a control group.The research group was managed with patient association，while the was managed by way of follow-up through telephone，clinic service and records to give them health instruction.After 1-year intervention，degree of satisfaction，visual analogue scale （VAS） score，and score of life quality of the two groups were observed，and the Bath index of the disease was collected.Results：Bath index and VAS score of the research group were significantly higher than those of the control group （P 0.01）；the improvement of satisfaction and life quality of the research group were significantly better than those of the control group 　　（P 0.01）.Conclusion：Managing patients of ankylosing spondylitis with patient association can effectively improve the disease Bath index and VAS score，control the progression of disease，reduce pain and relapse rate and improve the quality of life，worthy of clinical popularization. 　　【Keywords】 spondylitis，ankylosing；patient association；management mode 　　强直性脊柱炎（ankylosing spondylitis，AS）是一种以侵犯中轴脊柱关节为特征的慢性炎性疾病，同时可累及外周关节。本病在青壮年男性中较为多见，主要病理变化为肌腱、韧带