Psychological Effects of False-Positive Results in Expanded Newborn Screening in China 英文参考文献.docVIP

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Psychological Effects of False-Positive Results in Expanded Newborn Screening in China 英文参考文献.doc

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Psychological Effects of False-Positive Results in Expanded Newborn Screening in China 英文参考文献

PsychologicalEffectsofFalse-PositiveResultsin ExpandedNewbornScreeninginChina Wen-JunTu1*,JianHe1,HuiChen2,Xiao-DongShi2,YingLi3 1Center for Clinical Laboratory Development, Chinese Academy of Medical Science and Peking Union Medical College, Beijing, People’s Republic of China, 2China Rehabilitation Research Center, Beijing, People’s Republic of China, 3Department of Pediatrics, Beijing Haidian Maternal and Child Health Hospital, Beijing, People’s RepublicofChina Abstract Objectives:AsmorefamiliesparticipateexpandednewbornscreeningformetabolicdisordersinChina,theoverallnumber offalsepositivesincreases.Ourgoalwastoassessthepotentialimpactonparentalstress,perceptionsofthechild’shealth, andfamilyrelationships. Methods: Parents of 49 infants with false-positive screening results for metabolic disorders in the expanded newborn screening panel were compared with parents of 42 children with normal screening results. Parents first completed structuredinterviewusinglikertscales,closedandopenquestions.Parentsalsocompletedtheparentingstressindex. Results:Atotalof88mothersand41fatherswereinterviewed.Moremothersinthefalse-positivegroupreportedthattheir childrenrequiredextraparentalcare(21%),comparedwith5%ofmothersinthenormal-screenedgroup(P,0.001).39%of mothersinthefalse-positivegroupreportedthattheyworryabouttheirchild’sfuturedevelopment,comparedwith10%of mothers in the normal-screened group (P,0.001). Fathers in the false-positive group did not differ from fathers in the normal-screenedgroupinreportingworryabouttheirchild’sextracarerequirements,andtheirchild’sfuturedevelopment. Children with false-positive results compared with children with normal results were triple as likely to experience hospitalization(27%vs9%,respectively;P,0.001). Conclusions: The results showing false-positive screening results may affect parental stress and the parent-child relationship. Parental stress and anxiety can be reduced withimproved educationand communication to parents about false-posit