血友病治疗不及时易终身残疾9成患者被漏诊（When the treatment of hemophilia less easily lifelong disability, 9 of patients were missed diagnosis）.docVIP

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血友病治疗不及时易终身残疾9成患者被漏诊（When the treatment of hemophilia less easily lifelong disability, 9 of patients were missed diagnosis）.doc

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血友病治疗不及时易终身残疾9成患者被漏诊（When the treatment of hemophilia less easily lifelong disability, 9 of patients were missed diagnosis） When the treatment of hemophilia less easily lifelong disability, 9 of patients were missed diagnosis Hemophilia WHO (WHO) belongs to the rare disease definition, is due to coagulation disorders in vivo coagulation factor deficiency caused by the patients with spontaneous hemorrhage or trauma related features, the main bleeding site in the joints, soft tissue and muscle, will lead to serious disability and even death. According to the lack of coagulation factors in patients, they are classified into type A and B. Which is the lack of hemophilia a blood clotting factor VIII, the number of patients accounted for about 80%-85%; b lack of clotting factor, the number of patients accounted for about 15%-20%. According to population epidemiology, there are about one hundred thousand hemophilia patients in china. They require long term use of hemostatic agents to prevent bleeding and to prevent bleeding. Most patients had varying degrees of disability. The incidence of hemophilia because no obvious regional and ethnic differences and about 1/3 patients without family history, plus the treatment rate and diagnosis rate is not high, by the end of May 2012, China registered more than 10 thousand hemophilia patients only, about 90% of patients with hemophilia may be missed. The age of onset (first bleeding age) for most haemophilia patients is childhood, and early treatment of hemophilia B is very important. Treatment delays or deficiencies can lead to a variety of complications, including recurrent bleeding associated with joint disease and synovitis, which can lead to joint deformity and dysfunction in severe cases. In addition, more severe bleeding, especially intracranial hemorrhage, can lead to death. Especially for children with hemophilia B, early treatment can not only save the lives of patients, but also can avoid repeated bleeding problems caused