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Sense of coherence over time for parents with a child diagnosed with cancer 英文参考文献
BerghandBj?rkBMCPediatrics2012,12:79
/1471-2431/12/79
RESEARCH ARTICLE
OpenAccess
Senseofcoherenceovertimeforparentswitha
childdiagnosedwithcancer
IngridBergh?andMariaBj?rk*?
Abstract
Background:Whenachildisdiagnosedwithchildhoodcancerthiscreatesseverestressintheparents.Theaimof
thestudywastodescribethesenseofcoherenceanditschangeovertimeinasampleofparentsofchildren
diagnosedwithcancer.
Methods:TheSwedishversionofSOC(29items)wasusedtomeasuretheparents’(n=29)senseofcoherence.
Datawerecollectedatfourtime-points:Time-point1atthetimeofdiagnosis;time-point2duringthetreatment;
time-point3afterthechildhadcompletedtheirtreatmentandtime-point4whenthechildhadbeenoff
treatmentforsomeyearsorhaddied.
Results:TheresultsshowedthatSOCintheinvestigatedpopulationisnotstableovertime.Theparentsdecreased
intotalSOCbetweentime-points1,2and3.MothershadsignificantlyweakertotalSOCscoreincludingthe
componentsManageabilityandMeaningfulnessattime-points1aswelltime-point2comparedtothefathers.
However,forthecomponentComprehensibilitynosignificantdifferenceswereshownbetweenmothersand
fathers.Thisstudyindicatesthatmothers’andfathers’SOCscoreschangeovertimeduringthechild’ scancer
trajectory.However,thepatterninthesechangesvariesbetweenmothersandfathers.
Conclusions:Thisstudyindicatesthatmothersandfathersmayhavedifferentsupportneedsduringtheirchild’s
cancertrajectory.
Background
probably cope successfully with stressful life events. On
Inthedevelopedworldcanceraffects1in600childrenbe- the other hand, those with a weak SOC experience life
fore the age of 15 [1]. In Sweden every year 300 children as more chaotic, unmanageable, and meaningless and
aged 14 and under are diagnosed with cancer [2]. Even stressful life situations can be experienced as over-
though the survival rate in Sweden exceeds 75% [3] child- whelming. Antonovsky [10] states that adults’ SOC is a
hoodcancerisalife-threateningconditionforthechildand deep-rootedattitudetolife. SOC develops during child-
a severe trau
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