disclosure of parental hiv positive status what, why, when, and how parents tell their children in the era of haart in south africa披露的hiv阳性的状态什么,为什么,什么时候,父母告诉他们的孩子如何在南非在haart治疗的时代.pdfVIP

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disclosure of parental hiv positive status what, why, when, and how parents tell their children in the era of haart in south africa披露的hiv阳性的状态什么,为什么,什么时候,父母告诉他们的孩子如何在南非在haart治疗的时代.pdf

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disclosure of parental hiv positive status what, why, when, and how parents tell their children in the era of haart in south africa披露的hiv阳性的状态什么,为什么,什么时候,父母告诉他们的孩子如何在南非在haart治疗的时代

World Journal of AIDS, 2012, 2, 194-202 1 /10.4236/wja.2012.23025 Published Online September 2012 (http://www.SciRP.org/journal/wja) Disclosure of Parental HIV Positive Status: What, Why, When, and How Parents Tell Their Children in the Era of HAART in South Africa Sphiwe Madiba, Chidi Matlala School of Public Health, University of Limpopo, Medunsa Campus, Pretoria, South Africa. Email: Sphiwe_madiba@ Received June 15th, 2012; revised July 16th, 2012; accepted July 27th, 2012 ABSTRACT The aim of the study was to explore the decision to and the process of disclosure of parental HIV status to children. Fo- cus group interviews were conducted with 21 parents of 39 children aged 7 - 18 years. Participants were recruited from a highly active antiretroviral treatment (HAART) program of an academic hospital in South Africa. Parents disclosed more to older children than to younger children in the same family, and the breadth and depth of the information shared was depended on the age of the child. Communication with adolescent children included topics on HIV prevention and unsafe sexual practices. For parents with a long history of sickness, disclosure occurred soon after the diagnosis was made, when they had not commenced with antiretroviral treatment (ART). They disclosed to prepare their children for HIV related emergencies and imminent death. Parents also expected support from their older children after disclosure. Some parents were forced to disclose because children suspected their HIV status, and parents could not continue to hide symptoms like severe weight loss. In addition, parents disclosed to educate children on how to protect themselves from HIV infection. For most parents, disclosure was unplanned, emotive, and burdened with anxiety and fear of reject- tion by their children. However, when the decision to disclose was made, parents were ho