Consumer Participation in HIV Service Planning - Virginia 在弗吉尼亚州的消费者参与艾滋病服务计划.pptVIP

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Consumer Participation in HIV Service Planning - Virginia 在弗吉尼亚州的消费者参与艾滋病服务计划.ppt

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Consumer Participation in HIV Service Planning - Virginia 在弗吉尼亚州的消费者参与艾滋病服务计划.ppt

Consumer Participation in HIV Service Planning Quarterly Contractors Meeting May 12, 2010 Consumer Participation: Why? Planning Bodies and Consortium Roles: Ryan White Programs and the Planning process A unique perspective Health Resources Services Administration legislation mandates that all planning bodies and consortia include people living with HIV/AIDS (PLWHA) be included in the following activities: Needs assessment activities Planning for services Helping to identify and set service priorities In some cases, assist with making allocation recommendations for funding opportunities Consumer Participation:Ryan White Programs Consumers should be apart of or participate in all of the following areas/activities: Consumer Participation: Benefits For Consumers: Increased ability to participate in their own care, to care for their infected and affected family members, and/or to reach others in their community and engage them in care For Grantees/Agencies: Increased ability to reach persons living with, affected by, or at risk for HIV and AIDS, and to engage them and keep them in care Partnership: consumer participation strengthens the relationship between providers and clients which helps to promote engagement into care and adherence to treatment Consumer Participation: How to Elicit and Increase Participation Recognize Barriers to Recruitment - Lack of awareness of Care Act programs and planning bodies - Lack of knowledge about how to get involved, including criteria for membership - Unclear roles, responsibilities, and expectations - Belief that PLWHA are not taken seriously - Fear of disclosure of HIV status, sexual orientation, stigmas - Financial cost to participate (transportation issues) - Distrust of public programs and providers - Discomfort or lack of understanding of the complexity and formality of planning body procedures Consumer Participation: How to Elicit and Increase Participation Recruitment of PLWHA Implement a formal O