developing a multidisciplinary team for disorders of sex development planning, implementation, and operation tools for care providers开发一个多学科小组性障碍的发展规划,实现和操作工具,用于保健提供者.pdfVIP

Hindawi Publishing Corporation Advances in Urology Volume 2012, Article ID 604135, 12 pages doi:10.1155/2012/604135 Methodology Report Developing a Multidisciplinary Team for Disorders of Sex Development: Planning, Implementation, and Operation Tools for Care Providers Mary Elizabeth Moran1 and Katrina Karkazis2 1 Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, 722 West 168th Street, New York, NY 10032, USA 2 Center for Biomedical Ethics, Stanford University, 1215 Welch Road, Modular A, Stanford, CA 94305-5417, USA Correspondence should be addressed to Mary Elizabeth Moran, mem2251@ Received 14 January 2012; Revised 20 March 2012; Accepted 20 March 2012 Academic Editor: Amy B. Wisniewski Copyright © 2012 M. E. Moran and K. Karkazis. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. In the treatment of patients with disorders of sex development (DSD), multidisciplinary teams (MDTs) represent a new standard of care. While DSDs are too complex for care to be delivered effectively without specialized team management, these conditions are often considered to be too rare for their medical management to be a hospital priority. Many specialists involved in DSD care want to create a clinic or team, but there is no available guidance that bridges the gap between a group of like-minded DSD providers who want to improve care and the formation of a functional MDT. This is an important dilemma, and one with serious implications for the future of DSD care. If a network of multidisciplinary DSD teams is to be a reality, those directly involved in DSD c