Psychosocial Factors That Shape Patient and Carer Experiences of Dementia Diagnosis and Treatment A Systematic Review of Qualitative Studies 英文参考文献.docVIP
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Psychosocial Factors That Shape Patient and Carer Experiences of Dementia Diagnosis and Treatment A Systematic Review of Qualitative Studies 英文参考文献
PsychosocialFactorsThatShapePatientandCarer
ExperiencesofDementiaDiagnosisandTreatment:A
SystematicReviewofQualitativeStudies
FrancesBunn1*,ClaireGoodman1,KatieSworn2,GretaRait3,CarolBrayne4,LouiseRobinson5,
ElaineMcNeilly1,SteveIliffe3
1CentreforResearchinPrimaryandCommunityCare,UniversityofHertfordshire,Hatfield,Hertfordshire,UnitedKingdom,2SocialPolicyResearchUnit,Universityof
York,York,UnitedKingdom,3ResearchDepartmentofPrimaryCareandPopulationHealth,UCLMedicalSchool,London,UnitedKingdom,4DepartmentofPublicHealth
andPrimaryCare,UniversityofCambridge,Cambridge,UnitedKingdom,5InstituteforAgeingandHealth,NewcastleUniversity,NewcastleuponTyne,UnitedKingdom
Abstract
Background: Early diagnosis and intervention for people with dementia is increasingly considered a priority, but
practitioners are concerned with the effects of earlier diagnosis and interventions on patients and caregivers. This
systematic review evaluates the qualitative evidence about how people accommodate and adapt to the diagnosis of
dementiaanditsimmediateconsequences,toguidepractice.
Methods and Findings: We systematically reviewed qualitative studies exploring experiences of community-dwelling
individualswithdementia,andtheircarers,arounddiagnosisandthetransitiontobecomingapersonwithdementia.We
searched PubMed, PsychINFO, Embase, CINAHL, and the British Nursing Index (all searched in May 2010 with no date
restrictions;PubMedsearchupdatedinFebruary2012),checkedreferencelists,andundertookcitationsearchesinPubMed
and Google Scholar (ongoing to September 2011). We used thematic synthesis to identify key themes, commonalities,
barrierstoearlierdiagnosis,andsupportidentifiedashelpful.Weidentified126papersreporting102studiesincludinga
totalof3,095participants.Threeoverarchingthemesemergedfromouranalysis:(1)pathwaysthroughdiagnosis,including
its impact on identity, roles, and relationships; (2) resolving conflicts to accommodate a diagnosis, including the
acceptabilityofsupport,focusingonthepresentorth
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