原创力文档the perspectives of bereaved family carers on dying at home the study protocol of ‘unpacking the home family carers’ reflections on dying at home失去亲人的家庭照护者死在家里的视角研究协议的u201c拆包家家庭照护者u201d反思死在家里.pdfVIP
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the perspectives of bereaved family carers on dying at home the study protocol of ‘unpacking the home family carers’ reflections on dying at home失去亲人的家庭照护者死在家里的视角研究协议的u201c拆包家家庭照护者u201d反思死在家里
Payne et al. BMC Palliative Care 2012, 11:23
/1472-684X/11/23
STUDY PROTOCOL Open Access
The perspectives of bereaved family carers on
dying at home: the study protocol of ‘unpacking
the home: family carers’ reflections on dying
at home
1* 1 2 3 2 4 3
Sheila Payne , Sarah Brearley , Christine Milligan , David Seamark , Carol Thomas , Xu Wang , Susan Blake
and Mary Turner1
Abstract
Background: Recent end of life care policy prioritises patient choice over place of care and in particular promotes
dying at home. This policy is predicated on the assumption that there are family carers able and willing to provide care
for the dying person. Through the accounts of bereaved family members, the ‘Unpacking the home’ study aims to gain
an in-depth understanding of ‘home’ and the issues faced by family members caring for a dying older person at home;
it also aims to examine the way the home is transformed in the process of providing end of life care, and offer a critical
analysis of policies that aim to increase home deaths. This paper presents the protocol for this study.
Methods/design: A cross-sectional qualitative study has been designed to achieve the study aims. In-depth interviews
will be conducted in the north and south of England with 50 bereaved family carers to elicit their accounts of
witnessing the dying in the home of an older person (50+ years). All interviews will be subjected to thematic analysis,
and narrative analysis will be undertaken on a subset of 30 interview transcripts. A final phase of integration and policy
analysis will be conducted towards the end of the study. User involvement is integral to this study, with service users
actively engaged at every stage.
Discussion:
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