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Patient Involvement in Pain Guidelines Judy Birch Pain Alliance Europe NHS Evidence Accreditation Advisory Committee Disclosure Statement of Financial Interest I, Judy Birch, DO NOT have a financial interest/arrangement or affiliation with one or more organizations that could be perceived as a real or apparent conflict of interest in the context of the subject of this presentation. Background to patient involvement in policy Active Citizenship Network (ACN): “Charter of Patients Rights”: Right to participate in policy-making in the area of health International Alliance of Patients Organizations (IAPO) policy statement and guidelines on patient involvement Health and Social Care Act 2008, 2012 IAPO Policy statement: Patient involvement should occur whenever decisions are being discussed which will affect patients’ healthcare or lives including, but not restricted to, the following areas: Education and training programmes design ( for health professionals ) Research priorities and development Care and treatment guidelines Guideline case study Guidelines case study: PPSN/WFIP Guideline development bodies Referred to the AGREE Instrument and IAPO policy statement and guidelines on patient involvement ( add link/wording) Ongoing involvement, patients are EQUAL participants,record results and act upon them to implement changes. Pain Policy Paul Burstow MP, Minister of State for Care Services announced the following statement: “ The Department recognizes chronic pain as a long term condition, either in its own right or as a component of other long-term conditions. Everyone who suffers persistent pain should have a timely assessment in order to determine the cause of pain- if a cause can be determined- and to advise on options for treatment, including self-help. Patients with refractory chronic pain will benefit from the care-planning approach, but decisions should be taken on an individual basis depending on the se
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