转移性脊柱肿瘤患者治疗决策旅程地图的研究.pdf

No.3

·40JournalofNursingScienceFeb.2025Vol.40

转移性脊柱肿瘤患者治疗决策旅程地图的研究

李雪，秦林灿²,童博姗，唐棠，罗春梅

摘要：目的基于旅程地图识别转移性脊柱肿瘤患者治疗决策的多维需求，为满足该群体的决策需求提供借鉴。方法运用描述性

质性研究方法，选取17例转移性脊柱肿瘤患者进行半结构式深度访谈，采用内容分析法进行资料分析并绘制患者旅程地图。结

果按诊疗时间轴，从任务、触点、情绪和痛点4个维度将转移性脊柱肿瘤患者的治疗决策需求归纳为健康意识薄弱、就诊选择困

难、治疗方案理解困难、信息获取与甄别面临困难、治疗反应困扰等32条主题，其中就诊筛查期11条、治疗决策期11条、治疗期

10条。结论转移性脊柱肿瘤患者治疗决策旅程复杂，其就诊选择、治疗决策、症状管理需求凸显。建议规范网络健康信息及开

发医疗评价平台，构建以护士主导、家庭参与的网络交互式治疗决策辅助工具，应用电子患者报告结局系统实施智慧症状管理，以

满足患者围治疗决策期的健康需求。

关键词：脊柱肿瘤；治疗决策；旅程地图；症状管理；健康需求；质性研究

中图分类号：R473.6D0I:10.3870/j.issn.1001-4152.2025.03.040

ThetreatmentdecisionjourneymapinpatientswithmetastaticspinaltumorsLi

Xue,QinLincan,TongBoshan,TangTang,LuoChunmei.DepartmentofGynecologyandObstetrics,theSecond

AffiliatedHospitalofArmyMilitaryMedicalUniversity,Chongqing400037,China

Abstract:ObjectiveToidentifythemultidimensionalneedsoftreatmentdecision-makinginpatientswithmetastaticspinaltumors

basedonthejourneymap,andtoprovideareferenceformeetingthedecision-makingneedsofthisgroup.MethodsAdescriptive

qualitativestudywasdesigned,and17patientswithmetastaticspinaltumorswereselectedtoconductsemi-structuredin-depthin-

terviews,thenthecontentanalysismethodwasusedtoanalyzetheinterviewdataanddrawthejourneymap.ResultsAccordingto

thetimelineofdiagnosisandtreatment,fromthefourdimensionsoftask,touchpoint,emotion,andpainpoint,thetreatmentde-

cision-makingneedsofpatientswithmetastaticspinaltumorsweresummarizedinto32themes:weakhealthconsciousness,diffi-

cultyinseekingmedicaltreatment,difficultyinunderstandingtreatmentplan,difficultyinacquiringanddistinguishinginforma-

tion,treatmentrelatedsymptomdistress,etc.,whichw