脑性瘫痪患儿家庭康复现状调查及建议.docVIP

精品论文 参考文献 脑性瘫痪患儿家庭康复现状调查及建议 （吉林大学第一医院发育行为儿科 吉林长春 130000） 　　【摘要】目的：了解脑瘫患儿家庭康复的现状。方法：采用“家庭康复现状调查问卷表”对我市两家康复机构长期康复治疗的99例脑瘫患儿家长进行问卷调查。结果：(91.92%)的脑瘫患儿缺少有效家庭康复的参与，且家庭康复中，（69.70%）的家长仅重视功能的训练，而忽视了对患儿的教育、心理康复。结论：可从家长培训、制定家庭康复方案及监测康复效果等方面给予家庭康复支持，走医院与家庭相结合的康复模式，从而促进脑瘫患儿全面康复。 　　【关键词】脑性瘫痪；家庭康复；现状调查；建议 　　【中图分类号】R493 【文献标识码】A 【文章编号】1007-8231（2016）27-0006-02 　　A current situation research and suggestions of family rehabilitation in children with cerebral palsy 　　Li Xinxin, Zhou Xue, Wang Bing,Li Kemeng,Luan Lingling . 　　Developmental-behavioral Pediatric affiliated to the first hospital of Jilin University ,Changchun 130000, China 　　【Abstract】Objective Understand the current situation of family rehabilitation in children with cerebral palsy. Method Make a questionnaire survey among 99 parents of cerebral palsy children who were long-term rehabilitated in our department using the family rehabilitation status questionnaire. Result 91.92 percent of children with cerebral palsy lack of effective participation of family rehabilitation, and 69.7 percent of parents only pay attention to functional training in family rehabilitation , but neglect of children education and psychological rehabilitation. Conclusion We can give rehabilitation support from several sides, including parents education making family rehabilitation programs and monitoring the efficacy of rehabilitation, combining hospital and family rehabilitation, then promoting comprehensive rehabilitation of children with cerebral palsy. 　　【Key words】Cerebral palsy;Family rehabilitation;Status survey;Suggestions 　　脑性瘫痪（cerebral palsy， CP）简称脑瘫，是一组持续存在的中枢性运动和姿势发育障碍、活动受限症候群，这种症候群是由于发育中的胎儿或婴幼儿脑部非进行性损伤所致[1]。脑瘫的发病率在世界范围内约为1.5permil;～4permil;，我国脑瘫发病率约为1.8permil;～4permil;[2]。脑瘫患儿正处于生长发育阶段，康复干预是保护患儿健康、降低致残率的有效措施[3]。目前国内外康复模式有院内康复、医院-社区-家庭康复、家庭康复等[4-5]。根据我国国情及医疗体系的特点，我国大多数脑瘫患儿主要是在现有的康复机构进行康复训练，缺少社区及家庭康复的参与，而且家庭康复中家长对患儿的训练方法掌握不够、训练时间不充足，致使脑瘫患儿缺少有效地家庭康复。本文于2015年8～10月对长春市两家大型康复机构的99名脑瘫患儿家长进行了问卷调